Showing posts with label bad days. Show all posts
Showing posts with label bad days. Show all posts

Thursday, October 2, 2008

Facing the truth and the light

I lay on the bed crying as my oncologist bows his head and prays with me, holding my hand. That is when you know the news is bad.
He had just told me that the chemotherapy drugs that I have been taking, and mind you, they are the strongest ones available, have not been helping at all. My liver has grown, along with the number of tumors growing inside.
“Can any other drugs help?” I ask.
He said there are some non-chemotherapy drugs that will work like one of them, but the chances of it actually helping me are less than 20 per cent. Also the side effects are acne and rashes ranging from my lower face down to my chest.
“No thank you, it’s not worth it,” I said.
Basically, I’ve been given a couple months. My oncologist was actually surprised to find that my liver has lasted this long, with no signs of jaundice:
“(A) medical condition in which too much bilirubin - a compound produced by the breakdown of hemoglobin from red blood cells - is circulating in the blood. The excess bilirubin causes the skin, eyes, and the mucus membranes in the mouth to turn a yellowish color. If the cause is not treated, it can lead to liver failure,” according to WebMD.com.
“So where do we go from here?” I ask.
He will give me the necessary drugs to make sure my last few months are comfortable. He also laughed when I asked if I can drink again. He nodded and said yes.
Just in case if you all were wondering, chemotherapy and alcohol does not mix well. Either I talk for hours and not realize it or I get sick as a dog. So it has been four months since my last drink, which was orange juice with a smidge of vodka. Thankfully, my fiancé loves Budweiser as a marinade for his steaks, so I am going to be one happy camper.
The other good news is that my hair will come back now. For months, I have been shedding like a Newfoundland in the spring. In the last month, after I shower, I have pulled out clumps the size of my hand.
Any woman will tell you, it is very hard emotionally to watch my naturally thick hair thin out to almost nothing. For this reason, I have not allowed any pictures of myself to be taken without a hat.
But I do not have to worry about it now. My hair is already starting to shed less and hopefully in a few months, my hair will be back to its natural state. Normally hair returns two to three months after chemotherapy, and depending on the person, it comes back thicker and either wavier or curlier. In my case, I will still have my mother’s wavy, thick hair.
So how is this going to change my future?
Well, my wedding plans are definitely going to have to be pushed up, so I can actually have energy to get through the ceremony. While my fiancé is happy to just go to the local justice of the peace, I want to get married in Nevada. Sorry, this is where my politics come out.
I am not and will not be a “Party B” according to my marriage license. Since homosexual marriages were approved this last June, to make the marriage licenses neutral for all wedded couples, the “Groom/Bride” portion has been replaced with “Party A/Party B.” I would rather fly to Las Vegas and officially be a “Bride” than to stay in California and be a “Party B.”
OK, that is the end of my rant.
And I do have to check with a lawyer to speak about a will and other financial questions, to prepare for the end.
I will still work as long as I can drive to the Citizen’s office. When I can no longer drive, I will work from home and just e-mail my stories to my editor.
Am I scared of the end?
No one really wants to die. I would rather give up my left arm or all of my hair to stay with my fiancé and grow old with him. I would even sacrifice my chances of having children if I can stay with him for 10 years or 50 years. I can live with just having puppies.
But I remember my grandmother’s last week on this world. She was talking with someone (whom I could not see) and she introduced me to this person. I knew then that her mother came to comfort her and my grandmother would not be going to the next world alone.
That gives me comfort. I know that my grandmother will be waiting for me on a very comfortable couch in front of a big screen Plasma TV with the NASCAR race on. And my dog Braveheart will be there, ready to jump up on me and give me puppy kisses. Also my fiancé’s grandmother will be waiting for me too, ready to give me a huge hug and kiss.
I will miss the people that I leave behind, but I know I will live in their hearts forever. And with the thousands of pictures that my friends and I have taken in our years at the Sacramento State Hornet newspaper, they will remember me full of life and healthy.

Saturday, June 7, 2008

Good and bad days

Cancer is just one big roller coaster. You either feel really good or you feel like you shouldn't have gotten out of bed.
Take this last week for example. On Monday I was feeling good until I went into the Oncology center of Kaiser South Sacramento. Right after the nurse gave me some anti-nausea medication, I got sick right in the middle of the room. The 2,000-calorie meal from Burger King that I had for lunch just came right back up.
Fortunately, the nurses understood and allowed me to clean up. Afterward, as I sat back down, I tried to avoid any eye contact with any of the other patients because it's pretty embarrassing to vomit in public.
One of the nurses sat down next to me and reminded me that I was in a room where people are used to getting sick. Also, if I'm going to be sick, I might as well get sick in a hospital. She gave me a new blanket and filled up my water bottle and allowed me to sleep while the strong drugs pumped into my body.
However, this was only the beginning of my bad week. Our special friend diarrhea came and visited me for a day or two, leaving me scared if there was another blockage in my ileostomy. My radiologist reassured me that the diarrhea could be a result of the treatments and possibly the tumor is shrinking. She smiled and said this is normal and to take some Imodium-AD.
So my week sounds pretty bad, right? Don't worry...it gets better. For three mornings, I couldn't get up past noon because of cramps. It was just Mother Nature's sick reminder that I shouldn't have children. Luckily, the medication that eases my normal pain is strong enough to take care of that annoying pain.
This week was really the first time that I truly felt the full effects of the chemotherapy since I started four weeks ago. Before, I have dealt with symptoms like mild hair loss and sensitive peripheral nerves, where my fingers, toes and throat become very sensitive to coldness. It makes eating ice cream, drinking Jamba Juice and other high calorie treats hard to ingest.
And you all must remember, I'm not on the strong chemotherapy yet. I have one or two more weeks of this session, followed by a two or three week break to allow my bone marrow to recuperate. The break will also allow me to try to gain some weight since this week I did not feel like eating much.
Now on the flip side, there are days when I feel like I could walk to San Francisco and back. One Saturday, after house-hunting in Elk Grove for a few hours, my fiance and I went to the mall for an hour. I collapsed on my couch afterward and slept for two hours straight, but earlier that day, I felt normal.
On other days where I do feel well, but not enough to join in a relay race, I have enough energy to either go grocery shopping or have a quick lunch with friends. Or I may have enough strength to write this column.
During my treatment, the only thing I can do is just to prepare for any type of day. I get as much rest as I can, try not to do any strenuous activities, eat as much as I can throughout the day without getting sick and take my anti-nausea medication if I do not feel well.
So as I relax on the weekend while I'm not connected to the chemotherapy, I mentally prepare for the next week and keep reminding myself that this session should be ending soon.